It’s coming up on ten years since Jesse Gelsinger died in a gene transfer study investigating a rare hereditary liver disorder, OTC deficiency. Gelsinger’s death
The fact is that Mr. Gelsinger and his family,
and all individuals who so selflessly volunteer to participate in
clinical trials, deserve better. They deserve a clear explanation of
the risks and benefits of the clinical experiment that is objective
and not influenced by the biases of the professional and clinical
interests of the participating investigators. They deserve a clinical
trial that is conducted in strict compliance with all regulations
and not tainted by the perception of financial gain by individuals
and institutions. And finally, they deserve our commitment to address
these complex problems so that the promise of new therapeutic
strategies can realize their potential in treating their
diseases.”
BibTeX
@Manual{stream2009-91,
title = {Confessions of James Wilson},
journal = {STREAM research},
author = {Jonathan Kimmelman},
address = {Montreal, Canada},
date = 2009,
month = jul,
day = 23,
url = {https://www.translationalethics.com/2009/07/23/confessions-of-james-wilson/}
}
MLA
Jonathan Kimmelman. "Confessions of James Wilson" Web blog post. STREAM research. 23 Jul 2009. Web. 15 May 2024. <https://www.translationalethics.com/2009/07/23/confessions-of-james-wilson/>
APA
Jonathan Kimmelman. (2009, Jul 23). Confessions of James Wilson [Web log post]. Retrieved from https://www.translationalethics.com/2009/07/23/confessions-of-james-wilson/
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